Case study from Heart Failure Policy Toolkit

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National online heart failure registry

29 September, 2015

The RiksSvikt HF registry1 is an internet-based registry whereby participating healthcare institutions register their heart failure patients online using data transferred from individual patient records.

The registry has been running since 2003. It records about 70 variables, including patient characteristics, diagnostics, lab results, symptoms, quality of life and treatment, in an online database managed by the Uppsala Clinical Research Center. After one year, people with heart failure are followed-up to identify any changes in the condition, treatment and health outcomes.

All participating healthcare centres have immediate access to information about registered patients, as well as reports and statistics. The registry serves as a database for epidemiological research and a tool to monitor the quality of care and guideline adherence in treatment of people with heart failure.

Links, references and key reading

  1. Swedish Heart Failure Registry. Swedish Heart Failure Registry Secondary Swedish Heart Failure Registry 2015. http://www.ucr.uu.se/rikssvikt-en/
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The Heart Failure Policy Network is an independent, multidisciplinary platform made possible with financial support from AstraZeneca and Roche Diagnostics. The content produced by the Network is not biased toward any specific treatment or therapy. All outputs are guided and endorsed by the Network’s members. All members provide their time for free. The Network is hosted by The Health Policy Partnership .