Integrated care services built around an alliance of primary and secondary care and including community support services
Darlington Integrated Heart Failure Service, UK
Darlington Integrated Heart Failure Service is a dedicated heart failure service build around an alliance of primary care and secondary care staff, patients and carers, including palliative care, counselling services, and voluntary social care agencies.
Multidisciplinary care programmes providing person-centred, adaptive care
St. Michael’s Hospital Heart Failure Unit, Dublin, Ireland
St. Michaels Hospital Heart Failure Unit offers a multidisciplinary programme that aims to improve the quality of life of patients with HF and ensure that patients are offered evidence-based care in accordance with their individual needs.
Person-centred care in patients with heart failure
Gothenburg University, Sweden
A first-ever, ‘proof of concept’ study has proven that person-centred approaches can improve health outcomes in heart failure. The study took place in five designated wards of the Sahlgrenska University Hospital in Gothenburg, working with patients with chronic heart failure (CHF) who had been admitted for worsening heart failure.
A charter on heart failure to call politicians to action
La charte sur l’insuffisance cardiaque, Belgium
In 2013, leading professional societies and patient groups involved in heart failure in Belgium launched a charter calling upon Belgian health authorities to improve the delivery of care and political attention given to heart failure in Belgium.
A policy consensus statement of heart failure care
The National Heart Foundation of Australia, Australia
The National Heart Foundation of Australia developed a consensus statement that identifies policy recommendations and options to improve the care for patients with heart failure in Australia. It is aimed at various actors in the health system, including health professionals, policy makers and consumers.
Marking a day to raise awareness of heart failure – the European Heart Failure Awareness Day
European Society of Cardiology (ESC)
Heart Failure Awareness Day is held in May every year. It has been established as a result of the combined efforts of national societies of heart failure across Europe, and is designed to raise awareness of heart failure, including possible symptoms, the importance of an early and accurate diagnosis, and the need for optimal treatment.
Awareness programmes to raise awareness of heart disease in women
The Woman in Red Campaign, USA, Sweden (and other countries)
‘Go Red for Women’ is an annual global campaign, launched by the American Heart Association to raise awareness and funds for cardiovascular disease in women.
A national audit to measure implementation of clinical guidelines
The National Heart Failure Audit, UK
The National Heart Failure Audit is a government audit that has been used to measure the implementation of NICE (National Institute for Clinical Excellence) and ESC HF guidelines in England and Wales.
Observational studies – Blitz in HF – Italy
The Italian society for hospital-based cardiologists, AMNCO, has begun an observational study, Blitz in HF, to look at the quality of care for HF patients across Italy. Their goal is to use this data to develop an accreditation system for HF centres.
A dedicated HF global registry
The Report HF Registry (international)
The Report HF Registry is a global, prospective registry that follows patients for 3 years after hospitalisation for HF. It aims to shed light on the quality of post-discharge care and factors linked to re-admission.
A national internet-based HF registry
The Swedish Heart Failure Registry (RiksSvikt), Sweden
The RiksSvikt HF registry is an internet-based registry whereby participating healthcare institutions register their heart failure patients online using data transferred from indiviudual patient’s records.
A blueprint for integrated care pathways which can be adapted to local contexts
A disease management programme focused on improving transitions between specialist and primary care
HeartNetCare-HF is an evidence-based disease management program involving specialised nurses, GPs and cardiologists aimed at improving transitions between specialised and primary care for HF.
A multidisciplinary follow-up programme with involvement from sickness funds
PRADO is an HF management programme in France, which aims to improve continuity of care after patients are discharged from hospital.
GP training on diagnosis of heart failure
University of Bradford Post Graduate Diploma in Cardiology, UK
The University of Bradford offers an 18-month Post Graduate Diploma Course in Cardiology. The course is open to registered practitioners who are required to practice evidence based medicine, critical problem solving skills, team working and effective communication skills.
Incentives for GPs to refer patients for specialist diagnosis of heart failure
The Quality Outcomes Framework (QOF), UK
The Quality Outcomes Framework (QOF) is an annual incentive programme for GPs in the UK to achieve improvements in certain health indicators. It includes an incentive to improve the specialist diagnosis of heart failure patients.
National standardised pathways and models of care for heart failure
National Clinical HF Programme, Ireland
National Clinical HF Programme 1 is a national standardised pathway and model of care for the patient journey in HF, jointly authored by professional medical bodies and the Irish Government’s HSE Directorate of Clinical Strategy and Programmes.
National clinical guidelines for multidisciplinary and integrated heart failure care
The National Institute for Health and Care Excellence (NICE) acute and chronic heart failure guidelines, England and Wales
NICE is an executive non-departmental public body of the Department of Health in the UK, which has acquired a high reputation internationally as an example of best practice for the development of clinical guidelines.
A blueprint for integrated, multidisciplinary heart failure care to be adapted to suit local contexts
The AMNCO integrated care pathway for HF, Italy
The Italian Association of Hospital-Based Cardiologists (AMNCO) developed a heart failure integrated care pathway which can be adapted to different contexts depending on available resources.
An in-hospital programme that promotes consistent adherence to the latest care guidelines
Get With the Guidelines, United States (American Heart Association)
Get With the Guidelines promotes consistent adherence to the latest care guidelines promoted by the American Heart Association.
Heart failure care pathway developed in consultation with patients
Proceso de insuficiencia cardiaca, Galicia, Spain
A group of experts from the university of Santiago de Compostela in Galicia, Spain, developed an HF care pathway to try to ensure all patients with HF receive consistent and continuous care across their entire care journey.
Standardised therapeutic education tools for use in cardiology centres
I-Care Programme, France, Belgium and Luxembourg
I-Care is a national programme that has developed therapeutic education units within cardiology centres in France. The aims of the programme are to organise a training course in therapeutic education and to develop standardised educational tools, designed specifically for patients with chronic HF.
Personalised care plans for advanced heart failure to help patients make their own choices for end-of-life care
The end-of-life HF care pathway, Brent, England
The end-of life HF care pathway is an NHS Improvement project involving an integrated approach to the care of patients with advanced heart failure in Brent, London, to ensure better identification, palliation of needs and choices at the end of life.
Nurse-led outpatient clinics
Nurse-led HF outpatient clinics, Sweden
Nurse-led heart failure clinics in Sweden provide coordinated disease management for HF patients. These clinics are led independently by specialised HF nurses, who provide rapid follow-up after hospitalisation and intensive patient education.
A nursing training scholarship programme
Heart failure nurse training fellowship, European Society of Cardiology
The ESC supports research and collaboration in nursing care for HF patients by awarding 2 HF nurse training fellowships annually.
A heart failure specialist nurse liaison service
NHS, Glasgow, UK
NHS Glasgow’s Heart Failure Liaison Nurse service assigns a specialised HF nurse to follow up on patients and act as a link between primary and specialist care.
Community cardiology services
Imperial College, London
Imperial College offers community-based, specialised cardiology services and diagnostic tests for patients with suspected heart problems.
Specialist training on heart failure for nurses and other health professionals – University of Santiago de Compostela
Specialist training on HF for nurses and other health professionals – University of Santiago de Compostela, Spain
Online training of GPs on heart failure
BMJ Learning, UK
The BMJ offers online modules on HF diagnostics and treatment for GPs and other health care professionals to raise awareness for HF in health care professionals. The 1 hour modules are evidence-based, peer-reviewed and free to access.
Telemonitoring-facilitated collaboration between GPs and heart failure clinics
The TEMA-HF 1 study, Belgium
The TEMA-HF 1 study examined the impact of intensive follow-up of patients through a telemonitoring-facilitated collaboration between general practitioners and heart failure clinics in Belgium.
TIM-HF clinical trial, Charité University Hospital Berlin
Electronic devices allowing patients to measure vital signs with 24/7 telephone support - TIM-HF clinical trial, Charité University Hospital Berlin, Germany
An intelligent communications platform allowing remote monitoring through non-invasive monitoring devices
E-care project, France
The e-care project offers an ‘intelligent’ electronic platform to remotely monitor HF patients and detect any sign of a deterioration of the condition.
Telemonitoring to help improve the quality of life for patients with heart failure
Heartcycle is an EU-funded project that develops integrated telemonitoring systems to measure and monitor vital signs in HF and coronary heart disease patients.
A long-term heart failure registry
Heart Failure Long-Term Registry, ESC
The ESC has set up a long-term heart failure registry that records the characteristics and treatment of HF patients in cardiology centres.