In 2003, Sweden became the first European country to develop a comprehensive heart failure (HF) registry.
SwedeHF gathers information on each patient, including aetiology of HF, clinical characteristics and medication. Since 2005, it has also included patient-reported symptoms and quality of life. Physicians and centres can access information on patients they register, and some data for comparison with other participating centres.
The goals of SwedeHF are to reduce morbidity and mortality and to increase quality of life for people living with HF by ensuring guideline-compliant care. A registry-based randomised clinical trial to assess treatment of HFpEF is currently enrolling participants and will include follow-up until 2022.
Links, references, and key reading
Swedberg K, Ekman I. 2005. Integrating heart failure guidelines into clinical practice. Eur Heart J Suppl 7(suppl_J): J21-J25
Mejhert M, Kahan T. 2015. A management programme for suspected heart failure in primary care in cooperation with specialists in cardiology. Eur J Gen Pract 21(1): 26-32
RiksSvikt (Swedish Heart Failure Registry). About SwedeHF. Available from: http://www.ucr.uu.se/rikssvikt-en/quality-registry/about-swedehf [Accessed 07/08/18]
RiksSvikt (Swedish Heart Failure Registry). About SPIRRIT HFpEF. Available from: http://www.ucr.uu.se/rikssvikt-en/rrct/spirrit-hfpef/about-spirrit-hfpef [Accessed 07/08/18]