Steven Macari
Association Vie Et Cœur (AVEC)
Steering Committee
A Scots-Italian who has been living and working in France since 1995, Steven is a qualified secondary school teacher, adult educator and online course developer. He received a diagnosis of chronic heart failure in June 2010 and has had a CRT-D device implanted. Steven is a founding member and president of Association Vie Et Coeur (AVEC), a patient-led heart failure support and advocacy association. He holds national certificates in therapeutic patient education (TPE) as a practitioner, program coordinator and e-educator. He also serves as a patient expert, regularly co-facilitating TPE workshops at the local hospital and, more recently, intervening in the university programs for medical and nursing students. He has a keen interest in digital health solutions and their integration into a blended healthcare solution and education. His collaborations, which are at the local, national and international levels, include medical establishments, associations, medical societies and numerous industry advisory boards. They include: patient committee member of the Investigation Network Initiative-Cardiovascular and Renal Clinical Trialists (INI-CRCT), steering group member of the Heart Failure Policy Network, and member of and contributor to the Global Heart Hub (GHH) Heart Failure Council.
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The Heart Failure Policy Network is an independent, multidisciplinary platform made possible with financial support from AstraZeneca and Roche Diagnostics. The content produced by the Network is not biased toward any specific treatment or therapy. All outputs are guided and endorsed by the Network’s members. All members provide their time for free. The Network is hosted by The Health Policy Partnership .